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Pete's health updates
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USA AtticusFinch
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PostPosted: Wed Mar 23, 2016 10:48 am   Post subject: Reply with quote


Pete, your steadfast ability to focus on recovery is an inspiration! We surely miss you, and are united in our wishes for your return.
USA bonnie VIP (subscribed member)
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PostPosted: Thu Mar 24, 2016 11:16 am   Post subject: Reply with quote


OH Petey ~ I reread our log here; you are always at the front of our chat thoughts, sir. May the nerve block assist mightily ~ may your courage & focus increase ~ & may your inner & outer families (AFM SST, etc) sustain you. Snoopy will love your first hug & all that follows, we pray. ~ bonnie
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USA bonnie VIP (subscribed member)
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PostPosted: Thu Mar 24, 2016 11:21 am   Post subject: Reply with quote


AveD wrote:
update from Pete, Sat. March 19:

I am in Inpatient Rehabilitation. This is the last stop before getting released and being discharged. To be here I needed to get off all IV pain medicine. Now, I was on such for a good while leading up to this, with my phantom pain interfering. The Pain Docs did come with a combo that could that get get me through BUT it was very constipating and that was NO fun. Even now I cringe thinking about it. It was a challenge but Pain Doc and Neurology came up with an idea for me called a Nerve Block.

In this procedure, sympathtic nerve endings would be targeted having to do with the amputated leg and with these chemicals, the hope was for the pain to be changed or removed. They WERE changed (muted) and this has allowed us to lower the dosage of the pain meds and that helps with that other issue etc.

So, here, we are at the inroads of rehab and let me tell you: it's tough. I am at it but it's tough. Simple things are so hard. Basic things, so tough. That is where I am but I am at it. I am not giving up.

I will be in touch.

P
I sent you a note which didn't "take" here Pete. We are carrying you with much love and concern on AFM SST, etc. We pray that the nerve block is fully successful, and that you will have the Gift of great courage, focus, & stamina. ~ bonnie
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Netherlands Haino
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PostPosted: Tue Mar 29, 2016 12:19 pm   Post subject: Reply with quote


Heads up Pete ! Smile

Don't let it be an opera, make a happy operette of it. Wink
Keep faith buddy !

Haino.
USA AveD
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PostPosted: Tue Mar 29, 2016 1:29 pm   Post subject: Reply with quote


update from Pete - 3/29/16

Still in hospital. Sad

Recent blood clot setback. Bowel stuff. Really sucks. Had in-grown toenail removed. VERY PAINFUL.

Have been in touch with the Prosthetic company of choice: Scheck and Siress.
LOOK THEM UP IN RELATION TO HEMIPELVECTOMY.

I have great people working on me: here.
P
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PostPosted: Tue Mar 29, 2016 4:55 pm   Post subject: Reply with quote


Pete ~ you have an ARMY of friends who are cheering you on. Your comment about the fine help you are receiving is So Pete-like; you must be on the high road at last. ((hugs)) ~ bonnie
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Turkey horizon VIP (subscribed member)
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PostPosted: Mon Apr 04, 2016 3:24 am   Post subject: Reply with quote


We missed you PeteC, praying for you, there are good things on the horizon
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PostPosted: Mon Apr 04, 2016 2:26 pm   Post subject: Reply with quote


think of you pete here in uk
USA AveD
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PostPosted: Sat Apr 09, 2016 10:23 pm   Post subject: Reply with quote


Pete update 4-9-16
They are talking discharging but am not comfortable with it seeing as leg is still mostly numb. I need 50%, at least. Barely have 18%. Also, still have 'foot drop'.

I am taking care of myself for the most part doing chair to bed and toilet transfers etc. Leg is still too weak, however, to do crutches. That was my goal, really and before that, I will not feel right about a discharge.

They are proud of me here, though. I wish I felt the same.
Greece irincou VIP (subscribed member)
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PostPosted: Sun Apr 10, 2016 2:28 am   Post subject: Reply with quote


You can do it Pete... I am sure you can! We are proud too here and you will be able to feel proud about yourself pretty soon!
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Netherlands Haino
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PostPosted: Fri Apr 15, 2016 2:25 pm   Post subject: Reply with quote


Heads up Pete ! Smile

Well done, all that training !
Here a link to a video of professor Vilanur Ramachandran,
explaining his discoveries and help on phantomn-bodyparts.

https://youtu.be/3ky_f_Y_bEU


I'm sure you will find some relief in it, seeing it solved by him.

See you buddy ! Smile


Haino.
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